IPWSOからのメール

IPWSO(国際PWS協会)から、来年の総会の案内状がメールで来ました。以前、2004年頃ですが、PWSA(アメリカPWS協会)にいくつか問合せをした時に、僕のメールがあっちこっちに廻されて、最後にPamさんのところに着いたらしく、丁寧な御返事を頂いた事があり、僕のアドレスを残しておいてくれたようです。案内状も嬉しいですが、それ以上にIPWSOが良いなと思ったのは、送信したメールアドレスが何十人分か、全て見えていて、それが、各国の協会宛てのものと、僕のような個人宛てのものが、ごちゃごちゃに混ざっていることでした。個人情報云々とかより、IPWSOにとっては、国とか協会とか、そんな帰属は関係なく、PWS関係者なら、誰でもどうぞと、自由な風通しのよさを感じさせます。そのことは、いつも僕もそう思っています。
ありがとう、Pamさん、Giorgio Fornasierさん。来年はルーマニアで開催だそうです。案内状転載します。

Dear friends,
It is my great pleasure to inform you that the first announcement for the Sixth International Prader- Willi Syndrome Conference is now up on our website http://www.ipwso.org/ Please inform all members of your association and interested professionals. We invite everyone to attend this historic meeting, celebrating fifty years of progress since identification of PWS and opening the doors to the positive possibilities in the next half century. With a lot of labor and love, the planning Committee has put together an exceptional program, representing expertise and participation from around the world. This is an opportunity for scientists to collaborate and discuss latest research and for other professionals and parents to hear about the latest developments and future perspectives of PWS management.
Dorica Dan, President of Romanian Prader- Willi Association (RPWA) and Conference Chair, will soon be in touch with you concerning the details of this splendid program. She will fill in many of the details and answer your questions about programs and accommodations in our beautiful host country.
Please start to look for funding now, since June is not that far away. You will want to attend this meeting, to benefit from the plenary sessions, workshops, and opportunities to meet the experts. This will be an extraordinary occasion for dialogues and exchange between our 75 member associations.
I look forward to greeting you and each member of our global PWS family. Your attendance and participation will guarantee the success of our meeting and the international conference!

See you in Cluj,

Pam

Pam Eisen
President International Prader-Willi Syndrome Organization (IPWSO)